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Kusajili – Centralise les essais cliniques mondiaux
Résultat
de votre recherche par promoteur : Barbara B Biesecker
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Positive Exposure: A Photography and Video Intervention for Individuals With Craniofacial Differences
This study will describe the use of an intervention, developed by an organization called Positive Exposure, to improve self-perceptions among adolescents and young adults who may encounter...
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Essai clos aux inclusions
Plus d'informations
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The PTC124 (Ataluren) Clinical Trial for Duchenne Muscular Dystrophy: Exploration of the Experiences of Parents, Clinician Researchers, and the Industry Sponsor
The purpose of this study is to describe the experiences of parents, clinician researchers, and industry professionals who were involved in phase II clinical trials of Ataluren for Duchenn...
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Essai clos aux inclusions
Plus d'informations
Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Adaptation Among Adolescents and Adults With Klinefelter Syndrome
This study aims to understand the impact of living with Klinefelter syndrome (KS) and the factors that contribute to adaptation in adolescents and adults. Individuals with KS may have vari...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Adaptation and Quality of Life Among Adults With Neurofibromatosis Type I
This study aims to understand predictors of adaptation and quality of life among adults affected with neurofibromatosis type 1 (NF1) and autosomal dominant neurocutaneous condition. NF1 ca...
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Essai clos aux inclusions
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Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The Role of Social Comparisons in Coping and Quality of Life Following a Prostate Cancer Diagnosis
Social comparisons may function as a coping strategy, but their role in coping and quality of life has not been well characterized. The purpose of the current study is to investigate the r...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Perceptions of Thalassemia Major in Singapore: An Exploratory Study of Stigma
Background: - Thalassemia major (TM) is a chronic disorder that affects a person s ability to produce hemoglobin, resulting in anemia. Hemoglobin is a component of red blood cells...
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Essai clos aux inclusions
Plus d'informations
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Where Does Hope Fit In? The Relationship Between Hope, Uncertainty, and Coping Efficacy in Mothers of Children With Duchenne/Becker Muscular Dystrophy
Background: - Children with Duchenne/Becker Muscular Dystrophy (DBMD) slowly lose muscle function. They usually die at a young age. Some mothers adapt to the demands of caring for a child...
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Essai clos aux inclusions
Plus d'informations
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Informed Consent for Whole Genome Sequencing: Ideals and Norms Referenced by Early Participants
Since 2007, the cost of sequencing a diploid human genome has fallen dramatically, from approximately $70 million to $20,000. As affordable sequencing platforms become more widely availabl...
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Essai clos aux inclusions
Plus d'informations
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
A Coping Effectiveness Training Intervention for Caregivers of Children With Autism Spectrum: A Feasibility Study
In recent years, there have been a growing number of individuals diagnosed with Autism Spectrum Disorders (ASD). As such, this increase has expanded the number of caregivers of children wi...
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Essai clos aux inclusions
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Femme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Family Communication of Hereditary Breast and Ovarian Cancer Risk Among African Americans
Background: - Certain genetic mutations are linked to higher rates of cancer. It is important for people with these mutations to tell their families about it. This is because others in th...
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Essai clos aux inclusions
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