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Kusajili – Centralise les essais cliniques mondiaux
Résultat
de votre recherche par spéciliste : Barbara B Biesecker
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The Perceived Impact of Children s Risk Status for Hypertrophic Cardiomyopathy on Families: an Exploratory Study
This study proposes to describe how children s hypertrophic cardiomyopathy (HCM) risk status affects family functioning, behaviors, and relationships. HCM is the most common inherited card...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The Role of Family Functioning in Promoting Adaptation in Siblings of Individuals With Duchenne Muscular Dystrophy (DMD)
Background: We want to learn more about the relationship between the way families function and how children adapt to having a sibling with Duchenne muscular dystrophy (DMD). What we learn...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Cultural Congruence in International Genetics Research
This study will explore how cultural differences influence genetics research in developing countries. Human genetics research is becoming more common in developing countries. However, when...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The Role of Family Functioning in Adaptation to Being a Caregiver of an Individual With Rett Syndrome
Background: - Rett syndrome (RS) is a panethnic (affecting all ethnicities) neurodevelopmental (impairment of the growth and development of the brain) disorder affecting primarily...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
A Study of Consent Forms for Whole Exome and Whole Genome Sequencing
Background: The purpose of this study is to investigate the process of consenting participants to whole exome/genome sequencing and its outcomes. It is unknown how best to consent people ...
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Essai ouvert aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The Experience of Caregivers of Children With Down Syndrome
This study will explore how caregivers adjust to having a child with Down syndrome. Primary caregivers 18 years of age and older of a child with Down syndrome may be eligible for this stu...
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Essai clos aux inclusions
Plus d'informations
Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Adaptation to Living With a BRCA1/2 Mutation
Background: - Women who have a BRCA1/2 gene mutation have a very high risk of developing breast or ovarian cancer. They are also at increased risk of other developing other cancers. Male ...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
The Experience of Uncertainty in Parents of Children With an Undiagnosed Medical Condition
Background: - Rare and undiagnosed conditions are often chronic and disabling, with symptoms affecting different organ systems at various levels of severity. Perhaps the most ...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Living With Frontotemporal Dementia
Background: - Frontotemporal dementia (FTD) is the second most common cause of early-onset dementia. Alzheimer s disease is the most common. Alzheimer s disease happens most often in the ...
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Essai clos aux inclusions
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Femme et Homme Max 99 ans
Barbara B Biesecker
MAJ Il y a 5 ans
Uncertain Genetic Test Results for Lynch Syndrome
Background: - Individuals have varying tolerances for receiving ambiguous information. However, not much is known about how ambiguous genetic testing information is received. Also...
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